MICH-26 Reduce the proportion of children diagnosed with a disorder through newborn blood spot screening who experience developmental delay requiring special education services

National Data Source
Metropolitan Atlanta Developmental Disabilities Surveillance Program (MADDSP); Centers for Disease Control and Prevention, National Center for Birth Defects and Developmental Disabilities (CDC/NCBDDD)
Changed Since the Healthy People 2020 Launch
No
Measure
percent 
Baseline (Year)
15.1 (1991-2004)
Target
13.6
Target-Setting Method
10 percent improvement
Numerator
Number of 3-10 year-old children diagnosed with a disorder through newborn bloodspot screening who experience developmental delay requiring special education services
Denominator
Number of 3-10 year-old children diagnosed with a disorder through newborn bloodspot screening
Comparable Healthy People 2010 Objective
Not applicable

Comments

Methodology Notes

ADDM provides reliable, population-based prevalence estimates of the number of school-aged children with developmental disabilities over time and is the only program in the US conducting active surveillance for serious developmental disabilities using data on individual children. ADDM sites with access to both education records and newborn blood-spot screening data will contribute to these data points. Data from newborn bloodspot screening will be used to establish the denominator and these data will be linked to special education data obtained annually by each ADDM site with access to education records.

References and More Information

  1. Powell KK, Van Naarden Braun K, Singh RH, Shapira SK, Olney RS, Yeargin-Allsopp M. Long-term speech and language developmental issues among children with Duarte galactosemia. Genetics Med. 2009; (12):874-9.
  2. Powell, K. K., Van Naarden Braun, K., Singh, R. H., Shapira, S. K., Olney, R. S., Yeargin-Allsopp, M. Prevalence of developmental disabilities and receipt of special education services among children with an inborn error of metabolism. J of Pediatrics 2010 156:420-426.