Skip Navigation

MICH-28.2 Data Details

MICH-28.2 Reduce the occurrence of anencephaly

About the Data

Description of the data source, numerator, denominator, survey questions, and other relevant details about the national estimate.

National Data Source
National Birth Defects Prevention Network (NBDPN); Centers for Disease Control and Prevention, National Center for Birth Defects and Developmental Disabilities (CDC/NCBDDD)
National Vital Statistics System-Natality (NVSS-N); Centers for Disease Control and Prevention, National Center for Health Statistics (CDC/NCHS)
Changed Since the Healthy People 2020 Launch
Yes
Measure
per 100,000 live births 
Baseline (Year)
24.6 (2005-2006)
Target
22.1
Target-Setting Method
10 percent improvement
Numerator
Cases of anencephaly
Denominator
Number of live births
Data Collection Frequency
Biennial
Comparable Healthy People 2010 Objective
Not applicable
Methodology Notes

CDC's National Center for Birth Defects and Developmental Disabilities (NCBDDD) is collaborating with states in the National Birth Defects Prevention Network (NBDPN) to systematically collect population-based birth defects data on neural tube defects in a timely manner. Nine state birth defects surveillance programs that can collect anencephaly cases for all pregnancy outcomes were included in the dataset. Anencephaly cases are identified using either ICD-9 (741.0, 741.9) or CDC/BPA (741.00 – 741.99) codes.

Revision History

Any change to the objective text, baseline, target, target-setting method or data source since the Healthy People 2020 launch.

Description of Changes Since the Healthy People 2020 Launch

In 2013, the words “live births and/or fetal deaths” were replaced with “cases” and the phrase “were diagnosed”' was removed from the data label to reflect the data collected in the surveillance instrument. Data for anencephaly from any pregnancy outcome were aggregated from multiple population-based surveillance systems across the U.S. Some of these cases might have resulted in a termination. Additionally, the cases were occurrences and may not have necessarily been diagnosed in the base line or target year.